Path: utzoo!attcan!uunet!cs.utexas.edu!yale!bunker!hcap!hnews!261!1000!Frank.Whitney From: Frank.Whitney@f1000.n261.z1.fidonet.org (Frank Whitney) Newsgroups: misc.handicap Subject: How do =YOU= use a comput Message-ID: <12308@bunker.UUCP> Date: 8 Jun 90 18:13:27 GMT Sender: wtm@bunker.UUCP Reply-To: Frank.Whitney@f1000.n261.z1.fidonet.org Distribution: misc Organization: FidoNet node 1:261/1000 - Nerve Center, Pikesville MD Lines: 37 Approved: wtm@bunker.UUCP Index Number: 8733 [This is from the Spinal Injury Conference] > ED> Incompetence is the bigest problem we seem to face. > > It's everywhere! I am a C-1&2 incomplete quad and one of the best >things they taught me where I did my rehab was that nobody else should be >trusted to know what they're doing. If they screw up, I'm the one who >suffers so I'm the one responsible to see that things are done right. > They taught me to always know exactly what medications I'm supposed to >be taking, what doses and when. Many times both in the hospital and out >I've had to correct someone who would have given me a wrong dose. I guess >it all boils down to the fact that you still have to be in charge of your >own life whether or not you can physically do what needs to be done. > It's harder for children to do because they are used to trusting adults >and following instructions, but for a child who is a quad it is never too >early (in my opinion) to star learning to be in control. > I couldn't agree more. I guestion every new pill or procedure because it's my responsability. I went 20 years without a bad pressure sore. I then went for treatment of a minor abrasion, the doctor prescribed debredment crystals and duoderm. I asked an RN friend about it and she said yes, it works great. We went from an asprin sized 2 skin layer deep area to an area the size of a silver dollar and an inch deep. I needed two surgical procedures; it cut my sitting time by about 2-4 hours permanently; loss of skin and muscle tone not to mention being out of work off and on for over 2 years with less than 1/2 my income and almost losing my job. A much sadder and poorer but wiser Frank. -- Via Opus Msg Kit v1.01 -- Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!261!1000!Frank.Whitney Internet: Frank.Whitney@f1000.n261.z1.fidonet.org