Path: utzoo!attcan!uunet!cs.utexas.edu!yale!bunker!wtm
From: wtm@bunker.uucp (Bill McGarry)
Newsgroups: misc.handicap
Subject: Post Polio Syndrome
Message-ID: <12605@bunker.UUCP>
Date: 3 Jul 90 20:11:26 GMT
Sender: wtm@bunker.UUCP
Reply-To: wtm@bunker.uucp (Bill McGarry)
Distribution: misc
Organization: The Handicap News BBS (1-203-337-1607)
Lines: 84
Approved: wtm@bunker.UUCP

Index Number: 9020

The following information is from the National Organization for
Rare Disorders (NORD) database (on Compuserve):

Post-Polio National, Inc. 
(Post-Polio League for Information and Outreach) 
3581 University Drive 
Fairfax, VA  22030 

(703) 273-8171 
National Organization for Rare Disorders (NORD) 
P.O. Box 8923 
New Fairfield, CT  06812 
(203) 746-6518 

Polio Information Center 
510 Main Street, Suite A446 
Roosevelt Island, NY  10044 
(212) 223-0353 

National Easter Seal Society for Crippled Children and Adults 
70 East Lake St. 
Chicago, IL  60601 
(312) 726-6200 (voice) 
(312) 726-4258 (TDD) 

British Polio Fellowship 
Bell Close West End 
Ruislip, Middlesex HA4 6LP 
England 

The following is from Dick Barth's BBS (the HEX BBS):

Richard Barth, W3HWN,  rbarth@tumtum.cs.umd.edu
Handicapped Educational Exchange... (301) 593-7033 (TDD & 300 baud ASCII)
                                    (301) 593-7357 (300/1200 baud, 8N1)

       INFORMATION FOR POLIO SURVIVORS

  Polio survivors may be experiencing new health problems,
such as:
     *Muscle weakness
     *Muscle and joint pain
     *Unaccustomed fatigue
     *Breathing difficulties

  Recommended reading on this subject is the "Handbook on the
Late Effects of Poliomyelitis for Physicians and Survivors".
This practical, easy-to-read booklet is available for $6.00
from Gazette International Networking Institute (G.I.N.I.) at
the address below.

  The International Polio Network is open to polio survivors
and interested health professionals. For an annual membership
fee of $5, members receive "Polio Network News", a quarterly
bulletin with the latest in post-polio research, support
group activities, and upcoming polio conferences. In addition
members receive the Post-Polio Directory of physicians and
post-polio clinics, and support groups across the country.
Membership applications are available from G.I.N.I.

  Proceedings of the 1983 and 1985 polio conferences sponsored
by G.I.N.I. are available for $16. The 1987 conference is
scheduled for June 5-7 1987 at the Sheraton Saint Louis Hotel.
Write for further information.

  The foregoing information is from G.I.N.I.'s letter to HEX
of 30 January 1986. They may be contacted at:

Gazette International Networking Institute
4502 Maryland Avenue
St. Louis MO 63018
(314) 361-0475

Hope this helps!

				Bill McGarry

UUCP:       {oliveb, philabs, decvax, yale}!bunker!wtm
INTERNET:   wtm@bunker.uucp      l-hcap@vm1.nodak.edu
BITNET:     l-hcap@ndsuvm1.bitnet
	    (300/1200/2400 baud, 24 hours)
Compuserve: 73170,1064