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From: Patricia.Ferguson@f13.n123.z1.fidonet.org (Patricia Ferguson)
Newsgroups: misc.handicap
Subject: This Conference
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Date: 17 Jul 90 19:46:08 GMT
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MR> experience, but if anyone has problems dealing with or
MR> living with muscular diseases, I may be able to share some
MR> experiences and helful hints/ideas !

Thank you so much for offering!  I've been reading this for a little while 
and didnt really know where or when to jump in to ask a few serious 
questions.  I need to know a little about the musculo-skeletal problems with 
systemic lupus erythamatoses (SP?).  I have so many thoughts running through 
my head about what must be going on inside of someone with this type problem 
but I know that unless I experience it myself I will not fully understand 
them.  Since I dont have the disease but a loved one does, I want to try 
and understand as much as I can about what is going on and I hope that by 
talking with others that have similar problems that I might be able to.  I 
dont want to appear insensitive to anyone and I dont really know the "right" 
questions to ask.  If it is not too painful, I would appreciate someone 
sharing random experiences and helpful hints or ideas with me.
Everyone here seems to be well adjusted to their individual situations, 
whatever they may be, and I must say that I have a tremendous respect for 
all here.  Thanks in advance, just for allowing me to observe and ask a few 
questions.
          Patricia 
 

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