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From: Adrienne.Barhydt@p0.f14.n105.z1.fidonet.org (Adrienne Barhydt)
Newsgroups: misc.handicap
Subject: Re: Lupus
Message-ID: <12828@bunker.UUCP>
Date: 17 Jul 90 19:45:24 GMT
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>  He said one word to me "LUPUS" and walked out the door...At that 
> moment though I was devestated, I've never felt that alone.          
                                                       ^^^^^

I'm sorry to change the topic but you said something that really
hit home for me and I really feel the need to talk about it.  I
have MS, was diagnosed 7 years ago, and I'll never forget the
moment when the neurologist said your probably have MS.  I had no
idea what that meant but I knew it wasn't good.  But the most
incredible thing was the aloneness that I felt then.

Jumping 7 years into the future, that's now, I am doing pretty
poorly.  I saw my neurolgist last week (a different one) because
the treatment she prescribed to stabilize my condition is not
working.  She recommended some real heavy duty drugs and I am
thoroughly freaked out and scared.  And again, I got that
incredible aloneness, just like I did on hearing the diagnosis.
There is just nothing like that feeling.  I have been alone and
lonely but it's just nothing like this aloneness.

What more can I say?

--
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