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From: Nadine.Thomas@p59.f1.n360.z1.fidonet.org (Nadine Thomas)
Newsgroups: misc.handicap
Subject: Lupus
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Date: 20 Jul 90 20:18:01 GMT
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In a message to Nadine Thomas <13 Jul 90 16:30:00> Rusty Ferguson wrote:

 RF> after he was out of my sight.  I'll ask the primary care doc.  He
 RF> will answer a question if you narrow it down enough.

 RF> After they did the first set of blood test, before I knew they
 RF> suspected Lupus I called back to ask how the blood test were.  The
 RF> answer:  "ok." This is the same one that showed the positive ANA and
 RF> four other important result out of range.  Many others on the line.
 RF> From now on, I'll ask what is the ANA, the GAMA, and is anything
 RF> out of normal ranges.  >grin< Later.... 

No need to beat yourself up... just make a list of specific
questions and present them one at a time to doc and if you are not
satisfied repeat the question till you get an answer - even if it
is a definate `I don't know'.

Speak to either your primary doc or the lab and request a copy of
the tests with the results and norms or a blank form with the norms
listed so you can follow along.  You are entitled to copies of all
your records if you so request (but that can get very expensive).
My primary doc sends me the results in the mail and lists the
actual numbers along with his own remarks.

I had a thing on my leg that was like a hole that kept filling with
gunk and I would squeeze it to get it cleaned out.  It would get
very sore so finally I told him about it and he removed it and had
it biopsied (he cut out a piece just bigger then the hole so it
would (hopefully) heal in properly.  When the results *finally*
came back he sent the familiar taped closed card that said
"basically it was a BIG blackhead on your leg". (GRIN)

Communication lines had to be worked on and I had to express my
needs to him before we could get a smooth flow.  He stated back
what he felt he could and could not do and we discussed the
`groundrules'.  Kinda like a marriage only without the ceremony and
the sex.(giggle)

Nadine
Alias: Fido Bandido

*NUMERO UNO ON FIDONET MOST WANTED LIST*

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