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From: news@brian386.uucp (Brian McCane)
Newsgroups: misc.handicap
Subject: Waardenburg's Syndrome
Message-ID: <13021@bunker.UUCP>
Date: 23 Jul 90 20:03:49 GMT
Sender: wtm@bunker.UUCP
Reply-To: news@brian386.uucp (Brian McCane)
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Organization: McCane Consulting
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Approved: wtm@bunker.UUCP
Fidonet: Silent Talk Conference

Index Number: 9395

My wife has a very mild form of Waardenburg's Syndrome.  Back in December,
we had a baby girl, Lindsey.  We recognized the features caused by the
Syndrome, (white forelock, bow shaped mouth, and licanthic eyes (we had
done a LOT of research before we had her)).  Anyway, we took her in for
a hearing test and found out that she was in fact deaf (105 loss left,
85 loss right).  What I am getting around to asking, is has anyone had a
child diagnosed as being deaf at such an early age, (< 6 weeks), and if
so, what were you able to do to help her at that age.  We have people
from Ski-Hi helping US, but it doesn't seem like anything is being done
for her.  Speech pathologists at the nearest children's hospital say that
there is not much that can be done to help her until she is old enough
to be trained on how to take hearing tests to better ascertain just how
deaf she is.  What can I do now???

	brian