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From: Nadine.Thomas@p59.f1.n360.z1.fidonet.org (Nadine Thomas)
Newsgroups: misc.handicap
Subject: Lupus
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Date: 23 Jul 90 20:42:51 GMT
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In a message to Nadine Thomas <17 Jul 90 21:10:00> Rusty Ferguson wrote:

 RF> do walk when I feel like it, and had gotten back into it.  But now
 RF> for the first time in two weeks my skin burns again.  But I do feel
 RF> better but not great.  Will I ever feel great again?

If you really take care of yourself why not?  I know a woman who has had lupus over 20 years and she does pretty much everything she wants to BUT that is because she has and still does take care of herself and keep in fine tune with her body needs.

 RF> have gotten behind in keeping up with tracking the finances, but
 RF> they get paid via checkfree on automode.  But reconciling the bank
 RF> account seems to fall way behind now.  Oh did I tell you I'm an
 RF> accountant?  >grin<

Ha.... my ex is/was an accountant - before we married and I took over the checking and statements, he used to throw the statements into a draw, unopened, and after about a year switch banks after approximating fees etc.
That was his way of balancing his check book.

 RF> That I have a problem with, once I tell someone I'm going to do
 RF> something I have a hard time backing down.  Now I just don't make
 RF> promises.  I planned a board party not long ago that I did cancel at
 RF> the last minute though.  Just no way I could have done it.

Sounds like you are learning.  I tell people (and stick to it) (when I am in a flare) that I am working on a day to day basis and I cannot make decisions about a certain day until it arrives and then I stillmay have tochange my decision.  

 RF> Yea, but now I'm in remission.  How could something inactive go into
 RF> remission?  >grin<  Like I said I had been feeling better, but not
 RF> as well as I should.  My friends have been saying my message seem to
 RF> indicate that I'm getting back to normal.  It appears I was not
 RF> making a lot of sense in some of them a month or so ago. 

I am concerned that you are so wanting a remission that youare gonna crash land if that is not what is happening.
Your confusion is normal -wanting it to not be and yet knowing SOMETHING is going on (and not wanting it to be).

Nadine

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