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From: John.Kovacs@f3.n157.z1.fidonet.org (John Kovacs)
Newsgroups: misc.handicap
Subject: Re: retinitis pigmentosis
Message-ID: <14381@bunker.UUCP>
Date: 21 Sep 90 15:15:23 GMT
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[This is from the Blink Talk Conference]

Hi Maggi.The Berman Gund program really works better if you maintain 
status quo.They really don't require any special diet,exercise etc. 
They get upset if you change anything in your daily routines.I lost 
about 20 pounds last year and they got mad!I take an oral medication 
once a day that they supply.(it's a big mystery whatever it is)They 
also cannot tell you if any progress is being made because it's a 
controlled study.I go back once a year for a whole day of testing. 
Funding has been great,that's very encouraging!!
       I still drive during the day,but not for much longer I'm 
afraid.My father has RP and he's legally blind.He managed to teach 
for a long time.Gotta go.Talk to you again

? 
/s 
/s 
/?

/h

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