Path: utzoo!utgpu!news-server.csri.toronto.edu!cs.utexas.edu!yale!bunker!wtm
From: rudy@mtqua.att.com (Avram R Vener)
Newsgroups: misc.handicap
Subject: Re: Retinitis pigmentosis
Message-ID: <14519@bunker.UUCP>
Date: 2 Oct 90 00:40:08 GMT
References: <14273@bunker.UUCP>
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Reply-To: rudy@mtqua.att.com (Avram R Vener)
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Fidonet: Blink Talk Conference

Index Number: 10688

In article <14273@bunker.UUCP>, John.Kovacs@f3.n157.z1.fidonet.org
(John Kovacs) writes:
> Index Number: 10491
> 
   [ stuff deleted ]

> going to Berman Gund Labs in Boston for several years for an ex- 
> perimental treatment program for RP. I haven't lost 100% of my vision 
> yet,but it's only a matter of time. I am interested in any info.or 
> feedback concerning RP.I understand there is a seminar in Las Vegas 
> in December. Does anybody know more about it ? 
> Oh well,gotta go.Hope to be back soon.Bye.
   [ stuff deleted ]

John,

No I don't know anything about the seminar.  I have RP too and am
interested in this experimental treatment you mentioned.   A couple
of months ago my sister went to the Boston Eye and Ear clinic to
have some tests done.   When they interviewed her about our family
history they immediately pressed for samples of my blood (which for
the Cause of Medical Research I was happy to provide since they
were paying all the costs :-).   Can you tell me any details of the
treatment?   Is it intended to restore or regenerate damaged cells?
Stop the progessive degeneration of currently healthy cells?
Other?

Any information would be greatly appreciated.

Rudy Vener  uucp:  att!mtqua!rudy