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From: The.Bird@f38.n135.z1.fidonet.org (The "Bird")
Newsgroups: sci.med.aids
Subject: Re: (2488) Re: (2486) Am I paranoid, or are they just
Message-ID: <39401@shemp.CS.UCLA.EDU>
Date: 26 Sep 90 14:34:48 GMT
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Note:	Copyright 1990 by Daniel R. Greening.  Permission granted for
Note:	non-commercial reproduction.
Archive-number: 2545

Thank you so much for that wonderful view of medical research. You did so much 
better than I could have. I was trying to put my viewpoint into words but you 
have made it unnecessary. The FDA, the CDC-NIAID and the NIH are all between a 
rock and a hard place. They as organizations of PEOPLE make mistakes but they 
must take the heat also. Witness their willingness to implement the parallel 
track (compassionate use) drug exploration method with DDI and the heat they 
take from sensationalizing media and uninvolved "do gooders" when 6 out of 
8000 people on the parallel track died.

The reason we had Pentamadine available in the early days was due to a policy 
of the government/cdc to warehouse little used drugs that were unprofitable 
for drug companies but essential to patients.

I have some very strong words for some government officials and bureaucrats, 
but I must also give my thanks to so many selfless and caring researchers and 
support staff that spend each day working and trying to help folk like me. No 
one could hide an important discovery for very long. There are just too many 
whistleblowers of good conscience to allow that.....Again thanks for your 
essay. I have saved it and will refer to it often.

--  
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