Path: utzoo!attcan!uunet!know!cs.utexas.edu!yale!bunker!hcap!hnews!123!13.2!Rusty.Ferguson From: Rusty.Ferguson@p2.f13.n123.z1.fidonet.org (Rusty Ferguson) Newsgroups: misc.handicap Subject: Re: CHEMICAL SENSITIVITIES Message-ID: <14962@bunker.UUCP> Date: 12 Oct 90 19:45:38 GMT Sender: wtm@bunker.UUCP Reply-To: Rusty.Ferguson@p2.f13.n123.z1.fidonet.org Distribution: misc Organization: FidoNet node 1:123/13.2 - The NiteMare BBS, Memphis TN Lines: 64 Approved: wtm@bunker.UUCP Index Number: 11101 CS>The reason why is probably that the mental health workers CS>don't wasnt to be out of a job. my feeling is that if more I don't believe that, I'm not saying your wrong, I don't know that. I've not run into that, with the medical professionals that I brought it up with, they have been very receptive of toward having the information. One nurse even came to me once to ask me a question about lupus. On the other hand, I don't always feel comfortable informing the expert. I think my primary care doc is very good, but I feel that his lupus knowledge is somewhat lacking. I stay with him mainly because I know he cares, he even called once while he was on vacation to see how I was doing. On the other hand, the other day he said that my kidney infection was making the lupus flare. I don't know, does he just want to downplay things or does he really not know? I'm not sure. Kidney problems often go along with the type of mood swings that I have had, that along with the blood test that indicated decreased renal function make me wonder about his statement. On the other hand, I've noticed with other doctors when I described something, they tend to look for the least serious cause. Is this part of their training? I wish I knew, but it is beginning to look that way. He is STILL so quick to say that my inabitlity to help with the family move last weekend was physiological. He said it MIGHT be. No way! Considering my diagnosis one would think he would believe me. He keeps saying "I think your lupus is not that bad." I agree with him, mine is, at least at this time somewhat mild. But mild lupus is kind of like a mild heart attack, you don't freak out and assume the worst but you dang sure don't dismiss things either. His words though don't always support his action, he takes the necessary test and prescribes the medications that treat the lupus, all the while downplaying it, even at first trying to make be believe it was not real. My point in all of this, is while my Doc is not perfect, I thoroughly believe he does care. But I did come across two that didn't. One who sent me to a state mental hospital because she wouldn't call my Dr. That makes no since, I had insurance with 100% coverage, all she had to do is what I asked and she wouldn't do it. It was time for her to go home. Then the first doctor at the state hospital wanted to punish me, told me "the state of Tn. takes a dim view of what you have done." I didn't try to rob a bank or harm anyone other than myself yet I was treated like a criminal by this doctor. I wouldn't call attempted suicide a good thing to do, but I had done nothing to deserve that kind of treatment. Needless to say, I was in pretty bad shape after my visit with that doc. But then finally my doc stepped in and got me out of that place, I would have gotten worse in there. No doubt about it in my mind. BTW, I did give this Dr. (shrink, the one that got me out) a copy of a lupus pamphlet concerning mental problems with lupus. At that point, he did say that lupus could be contributing to the condition. I agree with that, it could be adding to it, it probably is adding to it, but it was not the entire problem. I'm lucky to have at least two Drs. with an excellent bed side manner. The third one believes me when I say it hurts (but his bed side manner is horrible but with time we too are communicating better). Progress is being made both physically and mentally. Oh well, you got me going again. >Grin< -- Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!123!13.2!Rusty.Ferguson Internet: Rusty.Ferguson@p2.f13.n123.z1.fidonet.org