Path: utzoo!attcan!uunet!zephyr.ens.tek.com!uw-beaver!mit-eddie!wuarchive!cs.utexas.edu!yale!bunker!hcap!hnews!105!41.15!Adrienne.Barhydt
From: Adrienne.Barhydt@p15.f41.n105.z1.fidonet.org (Adrienne Barhydt)
Newsgroups: misc.handicap
Subject: Shalom/Hello Again
Message-ID: <15234@bunker.UUCP>
Date: 27 Oct 90 03:27:14 GMT
Sender: wtm@bunker.UUCP
Reply-To: Adrienne.Barhydt@p15.f41.n105.z1.fidonet.org
Distribution: misc
Organization: FidoNet node 1:105/41.15 - Busker's Boneyard, Portland OR
Lines: 41
Approved: wtm@bunker.UUCP

Index Number: 11352

Hi Aaron,

I hope you are feeling better.

 AF> I called a 
 AF>neurologist and he asked me after 2 days when he got to the phone if I 
 AF>felt it was a *reaction formation* since this was not the typical course 
 AF>of my MS. My leg was completely numb and I had painful parathesias in the 
 AF>back and legs and I thought "Im crazy" on top of it all. Today I have 
 AF>some feeling back in my leg but the rest is about the same. I have been 
 AF>staying to myself. What is there to say. I feel so foolish sometimes with 
 AF>this invisible disease. 

IT IS REAL!  The sypmptoms we experience with MS are real, and unpredictable, 
and they vary.  The only meaningful way to talk about the typical course of 
your MS is retrospectively.  There is no reason to expect it will continue 
to behave the way it has in the past.  

>Oh, the neurologist gave me an appointment in 
 AF>about 2 weeks to see if my symptoms will have subsided by then. The real 
 AF>issue I believe is the first question I was asked is what kind of 
 AF>insurance to you have? I said none and then I was told there would be 
 AF>quite a wait for an appointment.  

That stinks!  The neurologist I see is in the MS clinic at the local 
university hospital.  I don't recall ever having a situation where I needed to 
see her right away.  But they have things set up so that you can call with a 
problem and one of the nurses from the MS clinic will call you back.  That way 
I get to talk to someone quickly who is knowledgeable about me and knowledgable 
about MS and has access to the doctor if there is anything she needs to check 
on.

Take it easy....but take it!

Adrienne 

--
Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!105!41.15!Adrienne.Barhydt
Internet: Adrienne.Barhydt@p15.f41.n105.z1.fidonet.org