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From: Don.Blair@p0.f869.n681.z3.fidonet.org (Don Blair)
Newsgroups: misc.handicap
Subject: M.S.
Message-ID: <15668@bunker.UUCP>
Date: 16 Nov 90 16:13:12 GMT
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Index Number: 11761

 AF> Don, Thank you for your timely and thoughtful response. Its
 AF> hard to believe you are picking this up all the way down under.
 AF> Talk about miracles.
 Yep the modern computer and communications systems are amazing..
 So amazing in fact that our Government controlled communications network is
 looking at introducing timed local calls, they would tax breathing if they
 could...
 AF> For me, I think the most difficult part of this
 AF> disease is feeling like I am living a lie. I look fine
 AF> (sitting) feel so darn tired and feel sometimes I don't fit in
 AF> the ABLED world and at the same time deny that I have any
 AF> disability.
 Denying you have this disease is lying to yourself..  As for hiding it from
 your friends, they can't be very close friends Aaron...  It can be
 difficult at times when you look quite normal for other people to take your
 disability into account.  I know of this,  I once told my wife that I
 wished it was more obvious to others when they are bustling all around me
 or talking AT ME at a rate of knots that mades me feel quite ill.
 She is a great leveller my wife..  They don't really give a F**K if your
 not well or if their behaviour in any way contributes to how poor you feel.
 She exclaimed...
 Once again I have to admit she is quite right..  (Oooo I hate it when she's
 so BL**DY right all the time)..  Serves me right for marrying an intelligent
 woman I suppose..
 AF> It makes no sense to me why I can't do a
 AF> particular activity.
 You mean you can actually FLY or transport yourself???
 I think you might be wallowing in self pity a bit by the sound of your
 thread there (No Offence Aaron)..  I don't know you and have only been
 getting this echo for a short time.  I also work hard at having a non
 judgemental approach to people, but try to look on the bright side of life
 will ya!  One of the things that has always got my back up (even B4 I got
 this disease) were Hypercondriac's.  I'm not accusing you of being one of
 these but as I said B4 in a previous posting Life could be a lot Worse!!
 If you have ever seen one of those Horror/War Movies/Newsclips you can
 surely see that having MS is better than a lot of other thing's that could
 happen to you in this life....

 AF> I found your letter really
 AF> infomrative a interested in the mention of a diet. No one up
 AF> here has made m it. Thanks again, Aaron

 That diet of which I spoke has been known to prolong periods of remission
 but is not a cure unfortunately..  In fact I have my doubts that even when
 they do discover the cause of this disease they will be able to repair the
 Myelin which is already damaged, particularly after seeing my MRI scan
 which showed where big blobs of Myelin had scarred in my brain..

 Take Care..   Don...

 p.s. I should soon have a disabled parking permit too, so I will be able to
 get angry as well.
                     Lifes like that..  :=)

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