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From: wtm@bunker.uucp (Bill McGarry)
Newsgroups: misc.handicap
Subject: Re: Apert Syndrome
Message-ID: <16711@bunker.UUCP>
Date: 9 Jan 91 21:52:32 GMT
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Index Number: 12778

Shoshana Wodzisz writes:
>I'd like to get in touch with anyone having any information on
>Apert Syndrome or anyone who knows anyone afflicted with it (regardless
>of age).

I'm sending you more complete information but here is a list of
some resources that should be helpful.

National Organization for Rare Disorders (NORD) 
P.O. Box 8923 
New Fairfield, CT  06812 
(203) 746-6518 

(All of this information is from the NORD database)

Apert Syndrome Support Group 
8708 Kathy Court 
Saint Louis, MO 63126 
(314) 965-3356 

NIH/National Institute of Child Health and Human Development (NICHHD) 
9000 Rockville Pike 
Bethesda, MD 20892 
(301) 496-5133 

For more information on genetics and genetic counseling referrals, please 
contact: 

March of Dimes Birth Defects Foundation 
1275 Mamaroneck Avenue 
White Plains, NY 10605 
(914) 428-7100 

National Center for Education in Maternal and Child Health (NCEMCH) 
38th & R Streets 
Washington, DC 20057 
(202) 625-8400