Path: utzoo!utgpu!news-server.csri.toronto.edu!cs.utexas.edu!yale!bunker!hcap!hnews!157!3!Pandora.Nigh From: Pandora.Nigh@f3.n157.z1.fidonet.org (Pandora Nigh) Newsgroups: misc.handicap Subject: Overload Message-ID: <17343@bunker.UUCP> Date: 31 Jan 91 22:11:27 GMT Sender: wtm@bunker.UUCP Reply-To: Pandora.Nigh@f3.n157.z1.fidonet.org Distribution: misc Organization: FidoNet node 1:157/3 - Nerd's Nook, Rocky River OH Lines: 37 Approved: wtm@bunker.UUCP Index Number: 13329 Hi Adrienne, the other day Ray and I started talking about how much more recently he has had to take care of and how much more he has to handle emotionaly. When you voiced your concerns over the burden you felt that you were placing on your husband, family and friends it started me thinking. When Ray and I first met and started dating I was very up front with him about my condition and the fact that I will keep deteriorating as time went on and tried to explain some what in detail what this meant. He said that he could deal with this. I realise that what people think sometimes is different then what they can do when the situation arises. Since recently I have had a major drop in my condition and he has been responding so well, this has really allayed some of the fears I held in the back of my mind for awhile, I wanted to know how he felt about the added work and stress for him and what made him able to cope. His answer was very simple, he felt that as long as I was not giving up and would continue to do what ever I could and was capable of he would stick it out also. He said that the one thing he couldn't and wouldn't tolerate was that if I just quit and did nothing and didn't even try to do anything. I brought up the point of what happens when I'm or if I'm not able to do anything other than move around in my chair. If he had to handle all the cooking, cleaning, feeding me, totaly dressing me (he has to help me with some things right now). He said that he loved me, that if I were to keep my mind active and put in even verbal instruction on how-tos and support that that would be fine. Just as long as I don't become a self induced vegatable. I think that most people and love ones can adjust and learn to go on as long as we are willing to put some effort forth. I know that while you are in this period of readjustment and new adaption it will take awhile for you and your family to work out and settle into what is reasonable expectations for you and what will be soon. But I really think as long as you keep that lets go for it attitude they will hang in there with you. Pandora -- Uucp: ..!{decvax,oliveb}!bunker!hcap!hnews!157!3!Pandora.Nigh Internet: Pandora.Nigh@f3.n157.z1.fidonet.org