Path: utzoo!news-server.csri.toronto.edu!cs.utexas.edu!yale!bunker!wtm From: covici@ccs.portal.com (John Covici) Newsgroups: misc.handicap Subject: Busalacchi On The Rebound AS Missouri Fights Father's Death Demand Message-ID: <18007@bunker.UUCP> Date: 8 Mar 91 04:28:20 GMT Sender: wtm@bunker.UUCP Reply-To: covici@ccs.portal.com (John Covici) Distribution: misc Organization: Covici Computer Systems Lines: 93 Approved: wtm@bunker.UUCP Index Number: 13853 BUSALACCHI ON THE REBOUND! MISSOURI FIGHTS FATHER'S PRO-DEATH DEMAND CLLUB OF LIFE by Linda Everett A 20-year-old woman who has been seriously disabled for nearly four years, who depended on a stomach tube for her daily nourishment, and who had little activity outside of turning her head or following nurses with her eyes, is now, after six days of therapy, sitting up, eating pureed foods (after not swallowing for three years), and using special devices to tell nurses when she wants more food or when she wants them to ``talk to me.'' This is an incredible story--not because the patient now smiles at the taste of ice cream and laughs at comic behavior. That's a predictable result of basic occupational therapy. It is incredible because there are people in this country, including her own father, who allege that--even with her improvement--it is medically and ethically appropriate and ``routine'' to starve and dehydrate her to death. The patient, Christine Busalacchi, has rebounded in the short period since her father, Pete Busalacchi, made it known he intended to move her out of the Missouri Rehabilitation Center and into a Minneapolis facility to escape Missouri's ``draconian'' law, which prohibits killing incompetent patients without ``clear and convincing evidence'' of their wishes. A lower court ruled on Jan. 17 that Pete Busalacchi had the right to decide whether Christine lives or dies. But the Department of Health, which represents the Missouri Rehabilitation Center--that's the facility which was ordered to starve Nancy Cruzan in December--on Feb. 4 appealed the lower-court ruling, saying Busalacchi, as Christine's guardian, is denying her constitutional rights. - Lying Lawyers - Busalacchi's attorneys, John Kilo and Willam Colby (who brought the pro-starvation appeal in the Cruzan case), rage that no one told Busalacchi that the feeding tube would be used to keep Chris unconscious for the rest of her life (the tube kept her alive, and she is conscious). They point out that parents have the right to make medical decisions for minor children, and those challenging such decisions ``must prove by clear and convincing evidence that the decision constitutes neglect.'' In the real world, denying someone food, water, or any life-sustaining care kills him--and that is surely neglect. Although Busalacchi reportedly has visited his daughter only seven times in the last four years (at least twice with reporters and cameras), his lawyers have the gall to speak of the ``natural bonds of affection that lead parents to act in the best interest of their child.'' Chris's recovery from a vegetative state is ``suspect,'' they say, since doctors said for two years she was not a rehabilitation candidate. Well, Chris proved them wrong, especially the fools who persist in tagging patients ``permanently unconscious.'' Joining Missouri's appeal to keep Chris alive are disability rights groups who point to the Missouri Supreme Court ruling which holds that the state's interest in preserving life applies as much to people with permanent cognitive impairments as to people with no disability. Reprinted from New Federalist V5 #9