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From: Jean.Prophet@f33.n371.z1.fidonet.org (Jean Prophet)
Newsgroups: misc.handicap
Subject: Pain and spasms
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Date: 12 Mar 91 05:59:11 GMT
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Index Number: 13897

[This is from the Spinal Injury Conference]

 > Hello peoples. Its been a bit since i've got on this echo but
 > lately i've been having alot of trouble with spasms(as do we
 > all) and pain. The pain i think is from the fusion of c6 and c7
 > but its made my right side highly sensitive to any sort of pain.
 > My left side seems to be duller and that help alot when i have
 > to have shots but the spasms are getting out of control. They
 > have tried all the antispacmatic meds around and the only thing
 > that seems to work is valium. They want me to take 80mg a day

      You are NOT in the boat alone .... The Doctor now has Buddy (my
other half) on Robaxin ... Buddy doesn't think it working very well.
The Baclofen (aka Liorasal) worked much better.  He used to take 10
milligrams in the AM and 10 Milligrams in the evening time.  Valium
helps a little but 80mg is MUCH to MUCH.  What you decribe as far as
spazms and feelings etc are exactly what Buddy expierences (C3,4,5,6
problem).

 > but thats way too much as far as i'm concered. Liorasal makes me
 > sick,dantrilin does do anything at all so i was wondering is
 > anybody has found somthing that works well or at least keeps
 > them in check. Any feedback would be greatly appricaeted. The
 > only option left is some sort of inplanted pump in my side with
 > a direct line into my spinal chord and i wont go that route. And
 > i dont really want to get addicted to valiums so if anyone has
 > some suggestions please let me know ok? Thanks alot

      Were you taking the Liorasal with Food .... that makes quite a
difference in helping with the nausaus feeling.  Or prehaps take it
with milk (if you can stand that).

      The implanted pump you are talking about pumps Bacolfen
(Liorasal) directly into your body as it is needed.  Why not try the
Baclofen again (most here are taking it) ... Take the medication with
food .... expierement with the dosage (that's what our doctor told us
to do) ... Spazms will still happen once in a while - I don't think
that can be avoided completely, but it did help Buddy.  He is taking
to Robaxin on a 'trial' period (just to make this NEW doctor happy
<grin>).... but Buddy feels that the Baclofen worked the best.

      Good luck ... let us know how you make out.

                                    Jean

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