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From: Patricia.Ferguson@f13.n123.z1.fidonet.org (Patricia Ferguson)
Newsgroups: misc.handicap
Subject: MS
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Date: 20 Mar 91 05:08:01 GMT
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AB> know I've skipped a LOT here.

You actually covered it quite well for me.  My husband was "tested" by way
of MRI and "nothing abnormal" was the report.  We really believe it is
central nervous system lupus (which his sister has also) and not MS.  But he
believes the neurologist has not ruled MS out completely yet.  It scares him
terribly, has since he was young.  He saw an advertisement on tv and it has
stuck with him ever since.

What sort of leg problems would be some of the more common ones at the
beginning based on your observations?  Rusty has some leg problems but I
think it is just mainly aches and pains, such as an arthritic type pain,
especially in the hips.  He does have nodules that come and go on his legs
but we believe that to be a low level of vasculitis.  I guess what scares
him the most as far as symptoms go would be the vision problems.  I haven't
read quite enough on the subject yet (not like the research done on lupus to
this point!).   He has tingling and occasional numbness in his extremeties,
which we also think is due to vasculitis since Raynauds has been diagnosed
in his hands.  He has had Bells Palsy 4 times on one side of his face and
once on the other side.

I guess I just need to know some more about the subject of MS and the
patient's feelings that go along with it.   Sometimes doctors dont shoot so
straight with you about things.  And like you said their knowledge can vary.
I havent read very much about it, just a pamplet or two from the doctors
office and about depression associated with it from another book.  (Do you
have problems with depression also?  I know depression goes along with
illness, such as lupus, but does it cause you more problems than the
physical problems at times?)  You have given me more here that what I have
read in my literature. I appreciate it terribly. And Rusty does too! Thanks
again!

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