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From: Frank.Whitney@f1000.n261.z1.fidonet.org (Frank Whitney)
Newsgroups: misc.handicap
Subject: Re: M.S.
Message-ID: <18245@bunker.UUCP>
Date: 20 Mar 91 05:10:57 GMT
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>way they expect to be answered.  eg. "How are you?"  Most people only want
>to hear "Fine" or "Good".  If you were to tell them how you really feel, you
>would stop them in their tracks.
>
Unfortunately, you are right on target with this message also.  That's
one of the misfortunes with having a disease like MS.  Nobody expect
the person with the disease or others with the disease or people who
are constantly around someone with MS can fully understand the
complications of the disease.  I know that sometimes I push my wife to
hard when I need things.  That's probably one of the best reasons for
me to keep busy at work etc so that she is able to get her proper
amount of sleep.  Just resting doesn't seem to be able to recharge her
it has to be actual sleep.  I can always tell when she's in a flare
because her sleep patterns become so deep that it's almost impossible
to wake her.  Before we were married and she was still working, I used
to call her every morning to make sure that she woke up.  Sometimes
she would even sleep through the phone but that was only on rare
occasions and if that were the case it was better for her to stay at
home anyway.
Frank.

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