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From: Pandora.Nigh@f3.n157.z1.fidonet.org (Pandora Nigh)
Newsgroups: misc.handicap
Subject: Re: electric mobili
Message-ID: <18818@bunker.isc-br.com>
Date: 15 Apr 91 22:07:45 GMT
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Index Number: 14975

  Hi Bill, I'm going to hold out as long as I can. But the problem isn't
just getting back aches, the problem comes in from the rib cage being
displaces and your other internal organs being crammped from the
compaction of the spine. So support has to be added to keep breathing
and other internal organs functioning prperly and not being punctured or
damaged. Right now my spinal collapsing isn't complete so I figure that
external supports durring the daytime can handle things. When it gets
more profound they will have to do the fusion just so that I don't
punture and compress my lungs at night when I'm not in my chair or in
the bath ect. I've had several years to come to terms with this
eventuallity. I just don't see the point in the way they want to quick
right away go totally drastic with a fusion instead   using external
methods untill it is really neccessary. While progssive disorders can be
a headache, at least a lot of stuff doesn't catch you by suprise, you
are told pretty much the odds  of at what will eventually go. For me
this gave me a chance to work into and adjust, and adapt better and not
be overly suprised as things keep going down hill. I've had a chance to
emotionaly work through it a bit for a few years.
                               Thanks for your support and encouragement
                               Pandora

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