Path: utzoo!utgpu!news-server.csri.toronto.edu!cs.utexas.edu!uunet!olivea!oliveb!bunker!hcap!hnews!Patrick.Tze
From: Patrick.Tze@hnews.fidonet.org (Patrick Tze)
Newsgroups: misc.handicap
Subject: ALS
Message-ID: <19047@bunker.isc-br.com>
Date: 25 Apr 91 18:26:58 GMT
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Reply-To: Patrick.Tze@hnews.fidonet.org
Organization: The Handicap News, Shelton CT (203) 337-1607
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Index Number: 15235

  I read your messages with interest. It is good to know that I am
not alone. I'am a 35 years old AL with 4 years history and would like
yo share my emotional and physical problem with other ALS patient. I
can't find such in Hong Kong. I 'am paralysed from neck down, can
hardly eat, drink and rely mainly on tube feeding and can't talk.
   Emotionally I'm depressed and lonely like all ALS victim. More so
as we do not have ALS support group here.
   Physicall I have great problem with my neck. It is so weak that my
head drop always even with support of a head band and need held up by
hand. This cause great stress to my back and spasm in the leg
whenever I try to raise my head. I also collect alot of of thick
sputum in my mouth and throst and choke easy and need suction often.
   These are just some of many problems I'm faced with and I wonder
if someoner share the same experience and would like to know how you
cope with it.
    Hope to hear from you soon and anybody wih an interest.

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