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From: Scott.Wallace@f61.n134.z1.fidonet.org (Scott Wallace)
Newsgroups: misc.handicap
Subject: Re: ALS
Message-ID: <19060@bunker.isc-br.com>
Date: 25 Apr 91 21:28:53 GMT
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Index Number: 15248

  Hi there Patrick...

 A quick reply from your message of 15-Apr-91:

 PT> These are just some of many problems I'm faced with and I wonder
 PT> if someoner share the same experience and would like to know how you
 PT> cope with it.
 PT> Hope to hear from you soon and anybody wih an interest.

So good to hear from you!  I have similar problems and I just
accept them as part of life.  I've had ALS almost 5 years and I
still manage to eat and swallow although I can't do much with my
body.

I think that ones survivability is directly related to state of
mind and mental attitude.  I look forward to each day and try to
get the most out of each day.  I'm fortunate to have developed
good friends I can count on to help me out whenever I need them.
I think most ALS patients will find a great lack of support from
local ALS Societies and support groups.  Why this is, I don't
know, but it's necessary for you to develop your own network.
Through my computer, I have developed a great network.  So,
consider me one of your supporters.

Take care and be happy!

        Ciao!
        Scott

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