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From: Tzipporah.Benavraham@f632.n278.z1.fidonet.org (Tzipporah Benavraham)
Newsgroups: misc.handicap
Subject: information
Message-ID: <15968@handicap.news>
Date: 5 Jun 91 02:46:24 GMT
Article-I.D.: handicap.15968
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Index Number: 15968

Hi Nadine. Yes I do have MS and indeed I have all the failings. My
optic nerve went first then it travelled down my spine and paralyzed
me. and yes Fatigue is a bad issue. They eyes were the first
problem. I use a voicebox to read the screen and as you know I am
blind person and professor.

I nevr took gamma globulin or a c t h because I also was a DES
daughter who had that cancer 4 times. The hormones seem to make me
sicker. So I tell people to try and avoid the drugs and therapies
that are what they call "invasive". If you put it in your body it
may well be a big big problem. There is a thig called "spongy
syndrome" in poeple who have MS where they find we hold all the
toxins in our body. then they go to work internally on things they
are not supposed to work on. Like our nerves. I try to stay AWAY
from sunshine since it makes me weak or if I go out, I use my
brething machine and oxygen. If I do not do that, I pass out. I also
wet a hat or scarf and place it on my head wet. It is cooling. I do
not care if it looks funny! at least I am safe and sound and feel
better.

There are many ways to "cope" and deal with the fatigue. I take
short naps. I also try to rest between classes. Or I take a cat nap
on the bus. I use nodoz (caffeine) to keep awake. And drink LOTS of
coffee and cola. The caffeine is a wonderful NATURAL thing. I prefer
IT to drugs to keep me awake. I can regulate it and take it at will.
Drugs require periodic constant administration./ I prefer the
ability to choose when I need it.

I do not know how this helps. But I hope it gives some insight. and
by all means FIGHT FOR THERAPY. It helps alot. I had excellent
therapy and feel better for it. I also remember what my therapists
teach me. drill and practice over and over and over again.

Good luck to your friend.

Tzipporah

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