Relay-Version: version B 2.10 5/3/83; site utzoo.UUCP Posting-Version: version B 2.10.2 9/18/84; site bmcg.UUCP Path: utzoo!watmath!clyde!burl!ulysses!mhuxr!ihnp4!zehntel!hplabs!sdcrdcf!trwrb!trwrba!cepu!bmcg!conant From: conant@bmcg.UUCP (Bob Conant) Newsgroups: net.kids,net.misc,net.net-people Subject: Know Anybody with the Marfan Syndrome? Message-ID: <1610@bmcg.UUCP> Date: Tue, 19-Feb-85 05:18:05 EST Article-I.D.: bmcg.1610 Posted: Tue Feb 19 05:18:05 1985 Date-Received: Fri, 22-Feb-85 09:49:57 EST Organization: Burroughs Corporation, San Diego Lines: 20 Xref: watmath net.kids:1004 net.misc:7461 net.net-people:465 There is at last an organization dedicated to helping those affected with the Marfan Syndrome, and the families of those affected. The Marfan Syndrome is a heritable disorder of the connective tissue which affects several bodily systems. The most dangerous problem in the syndrome is aortic dissection and/or rupture. There are chapters of this organization, the National Marfan Foundation, in several states. The address of the headquarters is: The National Marfan Foundation Priscilla Ciccariello, Chairperson 54 Irma Avenue Port Washington, NY 11050 Tel. (516) 883-8712 Bob Conant {sdcsvax||ihnp4!sdcrdcf}!bmcg!conant